This is the twenty-second in my occasional series I’m calling Travels with my Mother. If you’ve not read the first in the series, you might wish to have a look at that one as it gives the context behind these posts.
This week my sister and I made the decision to disconnect Mum’s landline in her nursing home. Since moving into her new room there, she has forgotten how to answer the phone, or perhaps no longer registers the ringing as an incoming call. On top of that, she is rarely positioned in her chair or bed within easy reach of the handset. Paying $35 a month for a service that is no longer being used seemed wasteful and pointless. So, I closed the account and the line was disconnected.
For some years now, I have spoken to my mother as close to every day as was possible: either in person when I visited, or a morning phone call. In the last couple of years the calls had by necessity got shorter: Mum’s span of attention on the phone diminished, as did her inclination to chat on. Prior to that, our conversations could be amusing, bewildering, or sad, depending on her mood on the day, or which particular fanciful byway her mind took us down.
I will admit that some days, making the call was harder than others. I’d have to search for a topic of conversation: when an elderly person’s world has shrunk to the four walls of a room and they can no longer remember what happened an hour ago, this is understandable. I would try to talk about things I was doing, about the kids and grandkids – Covid lockdowns last year made that harder, too, because even for younger and healthier people, physical worlds shrank somewhat. And at times I’d be seized by a sense of guilt: was it fair for me to chat on about my activities, my life, when my mother had so little in her own? Irrational, I know, but still.
Yet, over the past few days since the disconnection of Mum’s phone, I’ve gone to make my customary call and stopped short, remembering that it was no longer a possibility. I’ve had moments of thinking, That’s something I can talk to Mum about when I call her, only to remember: no phone line.
So, if there’s someone in your world with whom you have not connected for a while – parent, sibling, aunt or uncle, old friend or new – maybe it’s time to reconnect? Pick up the phone, write a letter or an email, send a WhatsApp or Facebook message. Not only do we not know what a difference that contact can make in someone’s life, or in our own; we can absolutely never know when it will no longer be an option. Or indeed, what we’ll miss. Go on, make the call!
Photos by Min An & Sound On at pexels
This is the twenty-first in my series called Travels with my Mother. If you’ve not read the first in the series, you might wish to have a look at that one as it gives the context behind these posts.
Dementia is sometimes referred to as ‘the long goodbye.’ It is an apt description for the drawn out grief someone experiences as their loved one transforms from an adult who is competent in all the business of life, to a dependent who needs help with the simplest of actions. This is the process of dying, spread out over months and years.
Thankfully, Mum still knows me when I walk into her room and say my name. The smile that appears on her face lights her whole room. It could light a city. Often it is accompanied by a shriek of joy; sometimes a tear or two. Then she settles back into her bed or recliner, grasping my hand. Of late, my visits are mainly about watching Mum as she dozes. I hold her hand or her arm. When I get up to fetch her a drink, or speak to a staff member, and once again put my hand on hers, she gives a faint smile and murmurs, ‘That’s better. Softer.’ I’m not entirely sure what she means (is my touch softer than the nurses’? or is she expressing pleasure at any touch?) It hardly matters. I just know she enjoys me touching her and that’s what I take from the interchange.
It’s painful – agonising – to observe Mum struggle to sip and swallow a mouthful of water. Some day she can barely hold her head up. But she is calmer now than she was in recent months. I imagine that her inner self is giving up the struggle, relaxing into her helplessness. She is not happy, I’m sure. But neither, I think, is she actually unhappy. She is floating on a sea of something akin to oblivion, small wavelets of time lapping at her, rousing her occasionally to connect with whoever enters her room or speaks to her.
The small expressions of joy at seeing someone she knows and loves have to be enough; indicators that my visits mean something. This morning, as I left her side, I kissed her forehead and told her,’I love you, Mum.’ She smiled back and I knew she was trying to say ‘I love you, too.’ I knew it; even though her speech is now impaired so much that getting even the simplest sentence out is a struggle. Her face, her smile, told me the rest.
This is the nineteenth in my series called Travels with my Mother. If you’ve not read the first in the series, you might wish to have a look at that one as it gives the context behind these posts.
As an appropriate end to a shocker year, my husband and I came down with a severe gastric flu, three days before Christmas. Our Christmas plans had been made with a wish and a prayer – who knew if any of it would eventuate, with new Covid outbreaks triggering fresh restrictions in some parts of Australia.
Turns out we were right to be sceptical.
We had to cancel our planned Christmas Eve lunch with Mum at an (open-air) cafe. That was to have been her Christmas celebration with her family, but we couldn’t risk her getting the illness we’d just had. There was nothing for it but to postpone.
When I called Mum to break the news, her response was very much in line with her usual pragmatism and easy-going nature: ‘Of course you can’t come, love. I wish I was there to do something for you both.’
She then went on to say, ‘I had a visit from my little daughter yesterday. I took her to visit friends at Bondi. She loves the water so she was excited to go to the beach. She had a lovely time.‘
I admit that, along with relief that Mum didn’t seem too upset by the postponement of our modest Christmas celebration, there was a pang. Who was the little daughter? Was it me, or one of my sisters, going back half a century? Or a new daughter conjured from Mum’s imagination?
It was strange, the sensation of being supplanted by a shadowy memory or a sibling who might not even exist.
Relief won out, of course. I could be happy for Mum’s ability to travel where and with whom she pleased, despite her imprisonment in a body and brain in a long, slow decline.
At least in her mind she was able to participate in a quintessential Aussie Christmas experience – a trip to the beach – with a little daughter who I may or may not have met.
We’ll do our planned cafe lunch a bit later, perhaps in time to welcome in what will, hopefully, be a better year for all.
Images by Olenka Sergienko & João Vítor Heinrichs at Pexels.
This is the sixteenth in my series called Travels with my Mother. If you’ve not read the first in the series, you might wish to have a look at that one as it gives the context behind these posts.
Some of my mother’s ‘travel stories’, of imagined trips or holidays, bring to mind actual experiences we have enjoyed together over the years.
Our parents were not especially adventurous but when it came to connecting with their daughters, they went all out. They’d travel to wherever we were: Canberra in the very early 70’s when my sister went to university there; a hippie community in northern NSW where my middle sister lived for a time; the USA and Canada when I was an exchange student. When I lived on a remote island in the Torres Strait, they began making plans to visit, though I’d returned to NSW before that could happen.
When my son and nephew were young, my two sisters and our parents would take them to Port Macquarie for a week or two each summer. They were wonderful holidays of mornings at the beach, afternoon teas at bangalow-fringed cafes, Grandpa fishing or kite flying with the kids, and nights spent reading or playing rowdy games of Canasta.
As our parents’ mobility and health began to decline, those glorious weeks were replaced by weekends, somewhere closer where we could still meet up and enjoy a seaside break. We’d lost one of our family by then to cancer, but those shorter holidays were still enjoyable, even if long beach walks were replaced by short strolls through town or a drive to a sightseeing spot.
Then Dad passed away and the closest we got to family holidays was a weekend with Mum at Kiama and another quick trip, to Canberra, a year later.
In 2009 when I was recovering from illness, they made frequent trips to provide support, company and practical help. Mum was eighty and Dad eighty four and they were in the final years of having their driver’s licenses.
After they’d both given up those licenses, their trips were chauffeured by family or in a taxi. Excursions became more functional: shopping, banking, doctors; but there were still occasional visits and celebrations with family for birthdays and Christmas.
Reflecting on those times, it strikes me that we usually don’t know when we are experiencing the last of a particular event. I’d no idea that the weekend at Kiama would be the last time Mum would enjoy a visit to the seaside. Or that Christmas last year would be the final time Mum would be able to visit my home. When was the last time we enjoyed a movie at the cinema? I think it was at little Glenbrook Cinema, watching Their Finest Hour. And our last celebratory restaurant dinner together was for Mum’s 89th birthday.
Those memories are now bittersweet, knowing that they are the last times we did those things. Mum’s world has been reduced to her nursing home and Covid-19 has shrunk it further, as I’m not able to take her out in the wheelchair to her favourite local cafe.
I do hope that we have not yet had our last cappuccino together.
All this is to say: treasure those precious moments and experiences with the people you love. We can never know if there will be another. And memories of special times can form a cherished album that we keep within our minds and hearts, full of those last things.
Images by Miriam Fischer & Nastya Sensei at pexels
After a long life lived with intelligence and a shrewd awareness of the world around her, my mother’s mind is failing. Not in a ‘railing at the world’ kind of way; hers is a much gentler decline, expressed in a vague blunting of her wits and a profound forgetfulness. I think her memory loss must feel like falling into a black hole every five or ten minutes. She often can’t recall answers to a question and will ask the same one over and over. Once a teacher, mentor and sounding board for her daughters and grandson, her attention now wanders, so it’s hard to maintain a conversational arc for longer than a few minutes at a time.
I treasure my connection with Mum, and this is painful to watch. She was the person who supported my learning and my studies: the boring parts (spelling lists in primary school, equations in high school) and those that were more fun (discussing books we’d both read, bouncing around ideas for an upcoming history essay for uni.) Mum and I enjoyed trips to the movies, watched classics together on Bill Collins’ Golden Years of Hollywood TV presentations, held season subscriptions to the theatre, talked politics and current affairs, and debated social issues over cups of tea and home made cake.
She was a vibrant conversationalist with a keen interest in and knowledge of world history, geography, literature and politics—much of it self-taught, and squeezed into rare moments of leisure from her demanding roles as orchardist, store keeper, café owner and home-maker. A sounding board for ideas or problems big or small, Mum was my ‘go-to’ person to share news, to fine-tune plans, and to swap stories.
Now, my heart aches as I witness her vagueness, her struggle to follow a conversation; her reduced engagement with the things and people around her. On my visits and daily phone calls, I keep up my chat about my life and things I’m doing, and also current events and important things on the news. But these are no longer meaningful for Mum in quite the same way.
I grieve for the connections we once had over ideas, places, people, books.
There is another side to this. As the insidious progression of her dementia damages parts of my mother’s brain and cognitive function, other facets emerge in original ways that are always fascinating, often surprising. After each visit or phone call I wonder about the conversation we just had, trying to parse the things she said or did, to pinpoint their meaning or origin. There is generally an echo of an event or comment from earlier that day or week that somehow makes sense in the fresh arrangement of Mum’s mind.
What this has meant for me is the possibility of engaging with my mother in novel ways, not informed by sadness alone. I am learning to see and appreciate the pleasure she might take from her perception of the world. Instead of mourning the erosion of her faculties, I strive to notice the beauty of her utterances and be intrigued by her sometimes startling statements. There is often humour, too—conversations with Mum are frequently hilarious.
All this is to say that I have recently embarked on a new journey with my mother, travelling with her on her winding pathway through the last months and years of her life. As I like to write, and writing helps me to make sense of my own experiences, I thought I’d begin a series of occasional blog posts about our explorations. Together, Mum and I will time- travel, meet people from the past, and venture into unknown territory. We will do some amazing things.
I invite you to join me on my travels with my mother.