This is the eighteenth in my series called Travels with my Mother. If you’ve not read the first in the series, you might wish to have a look at that one as it gives the context behind these posts.
Recently I showed Mum several of her old school reports from high schools she attended during WWII, when her father was away on overseas service with the Army. There was a clue on two of them which told me where Mum was living and what was happening in her life at that time.
‘See here, Mum, where the parent’s signature goes?’ I pointed at the faded handwriting. ‘These two were signed by your grandmother. Your mum had died by this time and you were living with her mother.’
Mum’s mother died in 1942 from a long illness and her three children were sent to live with different families because their father was not granted permission to return home from active service.
Mum showed no recognition at her grandmother’s name or even at what must have been a traumatic time in her young life.
I tried again: ‘Your grandmother was married to Bob then; her second husband. You always said you liked Bob; though not your grandmother so much. But you really liked Bob.’
At that name, a warm smile lit up Mum’s face. ‘Bob was kind,’ she nodded.
I said, ‘Do you remember why you didn’t like your grandma?’
Mum stared into space for a while before shaking her head. ‘I don’t remember her. Just Bob. He was lovely.’
This exchange left me wondering: was this another of dementia’s strange gifts: the expunging of difficult times and people, leaving only the good? Perhaps it was a transient phase of the disease. If so, at least it offered my mother the opportunity to recall someone whom she had loved and who had offered her a kindly presence at a difficult time.
If only we could all remember the good a little more and leave behind those painful, unwanted or distressing recollections, at least for a time.
This is the fifteenth in my series called Travels with my Mother. If you’ve not read the first in the series, you might wish to have a look at that one as it gives the context behind these posts.
Recently my family had to have some difficult conversations and make a hard decision: if our Mum / Grandma’s condition deteriorates in the near future, as her GP suggests may well happen, what, if any, interventions should take place?
All of the tests and/or treatments available involve a trip to hospital and intrusive procedures. With a very frail elderly woman with dementia, along with a raft of other health issues, hospital is not a place we want her to be – especially right now with Covid19 concerns.
So in consultation with Mum we have made the call to keep her in her nursing home and design a care plan that keeps her as comfortable and calm as possible.
There’s always a little voice of doubt with these things – what if we get it wrong? – but her GP is supportive of our decision and it means we get to spend the most time with Mum in the best possible way, rather than swathed in PPE in a hospital ward where visits will be limited.
Thinking about the fallout of Covid19 specifically, and with ageing and end of life issues more generally, it strikes me that one of the saddest aspects is the fracturing of an elderly person’s world.
When we live 90 or more years, chances are that many of our lifelong friends will have died before us, so our networks shrink accordingly. Add to that the limitations on visiting nursing homes and hospitals. There are many people being denied that precious last visit or connection with those they love.
In my own family I have an uncle who had wanted to visit Mum in her nursing home, because he is her only brother-in-law still living, and they had not seen each other for some time due to ill health on both sides. Then Covid19 visiting restrictions were imposed. Now he is himself in a nursing home with a terminal illness.
I have a dear friend whose sister is gravely ill, and whose brother and brother-in-law are also facing serious health issues. She is unable to help any of them, even with a visit and a hug.
My mother’s brother and sister-in-law and her nieces and nephews will likely be unable to visit her for one last time, assuming Covid19 lasts longer than she does.
All of this has given our communities a base level of sadness and helplessness that can’t be good for any of us. Into the mix go the frustrations and anxieties that naturally occur during a pandemic. Is it any wonder that people feel on edge, off balance, at their limit?
The only things that can help in these situations are love, kindness and patience.
I wish the world big doses of all three.
Images by Thiago Matos and Lisa Fotios at pexels
This is the fourteenth in my series called Travels with my Mother. If you’ve not read the first in the series, you might wish to have a look at that one as it gives the context behind these posts.
A thirty minute ‘window visit’ with Mum (short chat through a window due to Covid-19 visiting restrictions) left me feeling quite unhappy about her condition. She was even vaguer than usual and related a ‘travel story’ about a recent holiday that had not gone well. Mum’s imaginings are mostly about interesting, intriguing or amusing situations. This one was different: about a poorly planned holiday during which she had to find her own accommodation – an empty house – and awful food. (I probably don’t need to add that the holiday was not planned by her!) She was understandably glum as a result.
And, unlike most of her ‘travel stories’, I was unable to decide on the kernel of truth or reality at its heart. Perhaps it was a general unhappiness or discontented mood that had prompted it? There was nothing in past or recent events that I could connect it to.
I’m not sure why this affected me as it did but I struggled to accept this particular ‘travel story’. What made it harder was Mum’s demeanour during my visit. There are periods in which she’ll sit gazing vaguely around with her damaged, faded eyes.
The dementia is now impacting her speech, slowing and slurring her words. Many times she will search for everyday words that have been blacked out of her memory bank. When she can’t find a suitable substitute, her sentences might trail off into nothingness, or she’s left frustrated and silenced.
My mother, a woman rarely at a loss for words, silenced by her disease.
The unsettling thing is that, while she struggles to speak or relates a story about where her mind has taken her, she looks and sounds almost – but not quite – like my mother, Doreen. Her face, her voice, her expressions and mannerisms, are all Mum’s – except that sometimes, crucial parts of her are either missing or are invisible to me.
Conversations take on a surreal quality as though I’m talking to a woman pretending to be my mother.
And if I’m honest, I have to acknowledge that these times are hard and they don’t get easier.
It’s one of the hardest aspects of dementia for family and friends of the sufferer: witnessing the gradual crumbling of the person you love. It’s as if they are wandering into the mist and in danger of being lost forever.
An irony not lost lost on me is that, when I returned home from this visit, I noticed that the forget-me-nots in the garden were beginning to bloom.
This is the twelfth in my occasional series I’m calling Travels with my Mother. If you’ve not read the first in the series, you might wish to have a look at that one as it gives the context behind these posts.
Recently, due to visiting restrictions at my mother’s aged care home, I had to ‘visit’ with her via Zoom. Not ideal, especially for someone with serious vision and hearing impairments, but better than nothing. At least I got to see her face and she could (more or less) hear me. We had just over thirty minutes together, and Mum began by wondering if she’d just come back from an overseas trip.
That led to talking about Covid-19 and how most international travel had been stopped since earlier this year.
To fill in a lull in the conversation, I asked, ‘If you could travel anywhere you wanted, where would you go?’ I thought I knew what her answer would be (a cruise along some famous European rivers, admiring castles and mediaeval abbeys as the boat slipped past German or French towns – a long time dream of Mum’s.)
I got it wrong. Mum thought for a while and then she surprised me.
‘Somewhere along the coastline, I think. I like looking out at the sea. I think I’d like to go to Scotland.’
I must have sounded as surprised as I felt, because Mum let out a peal of laughter.
‘I’ve never been to Scotland. I think I’d want to go somewhere I’ve never gone to before.’
This, I could understand. I also enjoy exploring new places, although old favourites can also exert their pull. But although Mum has done a respectable amount of travelling in her long life – much more, I’m sure, than she would have dreamt of as a younger woman – she has not been to any parts of Europe or the UK. Somewhere I’ve never been before did leave a fairly wide field to choose from.
So, why Scotland? I’m still not sure, but I had to agree it was a destination that left plenty of scope for our imaginations.
After discussing it a while longer, we agreed that on our trip, we would take in the Shetland Islands (inspired, for me at least, by the breathtaking scenery in the TV series Shetland. Plenty of sea scapes and coastline there for Mum.)
And, the Scottish Highlands, which would also (we hoped) include the odd castle or two.
We were both very satisfied with this itinerary.
In this time of Covid-19, when the only travel that most people can do is to dream, our conversation made us feel that we were aligned with the rest of the world. And given that it was a ‘virtual’ meeting, it seemed entirely appropriate to be planning a ‘virtual’ trip.
Whether real, virtual or imagined, travel does broaden our horizons and often teaches us new things. Mum’s travels continue and I’m happy about that.